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Research Subject/Participant Information and Resources

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The University of Missouri Kansas City Human Research Protection Program Office of Research Compliance has developed this web page to provide you with additional information regarding participation in research.
Please use the links below to find answers to questions about participation in research.  
 
Research involving human participants (often referred to as "subjects") may take place in many locations around the Unversity campus or in locations off campus.  Research with human participants is conducted by many schools and departments including: Departments of Psychology, Sociology, Anthropology, and Schools of Dentistry, Medicine, Nursing, and Pharmacy. 
 
If you are considering participating in a research study, remember that participation is completely voluntary -- you can choose not to participate, or if you do decide to participate, you can choose to stop participating at any time. The Bill of Rights for Research Participants summarizes the rights you have as a research participant.
 
The National Institutes of Health sponsors a web site, called Clinical Trials. This web site provides information to the public about clinical research studies. There are other sources of information about ongoing research known as "clinical trials" that can acquaint you with research about special topics.

Bill of Rights for Research Participants

As a participant in a research study, you have the right:

  1. To have enough time to decide whether or not to be in the research study and to make that decision without any pressure from the people who are conducting the research. 
  2. To refuse to be in the study at all, and to stop participating at any time after you begin the study.
  3. To be told what the study is trying to find out, what will happen to you, and what you will be asked to do if you are in the study.
  4. To be told about the reasonably foreseeable risks of being in the study.
  5. To be told about the possible benefits of being in the study.
  6. To be told whether there are any costs associated with being in the study and whether you will be compensated for participating in the study.
  7. To be told who will have access to information collected about you, and how your confidentiality will be protected.
  8. To be told whom to contact with questions about the research, about research-related injury, and about your rights as a research subject. If the study involves treatment or therapy:
  9. To be told about the other non-research treatment choices you have.
  10. To be told where treatment is available should you have a research-related injury, and who will pay for research-related treatment.